The relationship between quality of life and health-related quality of life in young males with Duchenne muscular dystrophy.

摘要: Aim This study investigated the relationship between quality of life (QoL) and health-related (HRQoL) assessed factors other than health that contribute to differences in QoL young males with Duchenne muscular dystrophy (DMD). Method In this cross-sectional study, HRQoL measures were completed by 98 parents 85 children. The Quality My Life (QoML) questionnaire measured as single-items, Pediatric 4.0 Generic Core (PedsQL) was used a multidimensional measure HRQoL. Simple regression examine single-item QoL. Multivariable investigate may difference HRQoL. Results While ratings significantly correlated one another, only accounted for 21% 44% variability child- parent-reports respectively. None contributed child's be much higher HRQoL. Interpretation QoL are related but distinct constructs rated children DMD their parents. Further research is needed elucidate outside QoL. What paper adds Quality concepts (DMD) parents. Factors ‘health’ overall paediatric population DMD. This article's abstract has been translated into Spanish Portuguese. Follow links from view translations.