Hollows as Sampling Units for Community-Based Participatory Research in Appalachia: The Mountain Air Project.

作者: Beverly A. May , Kathryn M. Cardarelli , Roy Silver , W. Jay Christian , Nancy E. Schoenberg

DOI: 10.1353/CPR.2019.0065

关键词: SocioeconomicsCommunity-based participatory researchSocioeconomic statusParticipatory action researchGeographyUnit (housing)AppalachiaSample (statistics)General partnershipSampling frame

摘要: BACKGROUND In rural Appalachia, numerous geographical, historical, and socioeconomic barriers undermine health. We describe a community/academic partnership that leveraged local assets to implement an on-the-ground enumeration approach enrolling participants, ultimately achieving 82.1% response rate in cross-sectional study of adult respiratory disease. sought discuss challenges addressed while establishing accurate sample frame broadly accepted data collection procedure. METHODS Innovative established epidemiologic methods (household enumeration) were combined within community-based participatory research (CBPR) framework. Community members partnered with researchers identify appropriate, novel sampling unit: hollows. Members two community advisory boards (CABs) provided extensive guidance, health workers (CHWs) administered surveys spirometry from randomly selected households. RESULTS Most hollows (28/40) had participation rates more than 80%. The (N = 972) was representative the area. CONCLUSIONS Investigators seeking recruit hard-to-reach populations may consider guided by partners.

参考文章(23)
Ronald D. Eller, Uneven Ground: Appalachia since 1945 ,(2008)
Todd M Jenkins, Claudia Hopenhayn, Joe Petrik, The burden of lung cancer in Kentucky. The Journal of the Kentucky Medical Association. ,vol. 101, pp. 15- 20 ,(2003)
Nancy E. Schoenberg, Henry E. Bundy, Jordan A. Baeker Bispo, Christina R. Studts, Brent J. Shelton, Nell Fields, A rural Appalachian faith-placed smoking cessation intervention. Journal of Religion & Health. ,vol. 54, pp. 598- 611 ,(2015) , 10.1007/S10943-014-9858-7
Christina R. Studts, Yelena N. Tarasenko, Nancy E. Schoenberg, Brent J. Shelton, Jennifer Hatcher-Keller, Mark B. Dignan, A community-based randomized trial of a faith-placed intervention to reduce cervical cancer burden in Appalachia Preventive Medicine. ,vol. 54, pp. 408- 414 ,(2012) , 10.1016/J.YPMED.2012.03.019
Danielle M. Seaman, Cristopher A. Meyer, Jeffrey P. Kanne, Occupational and environmental lung disease. Clinics in Chest Medicine. ,vol. 36, pp. 249- 268 ,(2015) , 10.1016/J.CCM.2015.02.008
Nancy E Schoenberg, Jennifer Hatcher, Mark B Dignan, Brent Shelton, Sherry Wright, Kaye F Dollarhide, Faith Moves Mountains: an Appalachian cervical cancer prevention program. American Journal of Health Behavior. ,vol. 33, pp. 627- 638 ,(2009) , 10.5993/AJHB.33.6.1
Jennifer. Hatcher, Nancy E. Schoenberg, Human subjects protection training for community workers: an example from "Faith Moves Mountains". Progress in Community Health Partnerships. ,vol. 1, pp. 257- 265 ,(2007) , 10.1353/CPR.2007.0022
Susan E. Robertson, Joseph J. Valadez, Global review of health care surveys using lot quality assurance sampling (LQAS), 1984-2004. Social Science & Medicine. ,vol. 63, pp. 1648- 1660 ,(2006) , 10.1016/J.SOCSCIMED.2006.04.011
Jean G. Ford, Mollie W. Howerton, Gabriel Y. Lai, Tiffany L. Gary, Shari Bolen, M. Chris Gibbons, Jon Tilburt, Charles Baffi, Teerath Peter Tanpitukpongse, Renee F. Wilson, Neil R. Powe, Eric B. Bass, Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review. Cancer. ,vol. 112, pp. 228- 242 ,(2008) , 10.1002/CNCR.23157