Policies to foster quality improvement registries: lessons from the Swedish case.

摘要: Background and objectives Multi-institutional quality improvement registries (QI registries) are a promising approach to improvement. They also used for clinical research, public reporting other valuable purposes. The aim of this study was identify elements outcomes national policies promote in Sweden compare them with recent the USA. Methods This case draws on previous studies Swedish interviews, observations document conducted Results In Sweden, fostered by favourable patient data regulation an indirect control combining government funding soft professional self-governance. enables development high-quality QI which improvements engaged clinicians, research decision support practitioners stakeholders. For example, Riks-HIA/Swedeheart achieved improved cardiac intensive care, SCAAR/Swedeheart unique registry-based randomized trial, Rheumatology Quality Register provides Web interface encounters clarifies adverse effects biologic drugs. Still, system has persistent limitations, especially administrative burden participants. USA, Medicare's programme qualified changes mirror policies. Automated capture is US advantage, but uncertain complex regulations stall registry Conclusion findings indicate that tailor-made regulatory policy foster multiple meaningful uses. These offer framework further cross-country comparative evaluate (Less)