作者: David Kavanagh , Esben Strodl , Jeremy K. Russell
DOI: 10.1007/S12369-021-00765-X
关键词: Perception 、 Narrative 、 Anxiety 、 Intervention (counseling) 、 Metacognition 、 Personal experience 、 Social robot 、 Psychology 、 Clinical psychology 、 Distress
摘要: Young people with cystic fibrosis face significant physical discomfort and an extensive treatment burden that often includes lengthy hospital stays and increased risk for psychological distress. With many treatments being critically important, parents are often compelled to act as translators between the child patient and medical staff. An inadvertent consequence of this dynamic is that young patients can be hindered from freely discussing their personal experiences of cystic fibrosis (CF) and finding ways to ameliorate their …