Medical research, Big Data and the need for privacy by design:

作者: Bart Jacobs , Jean Popma

DOI: 10.1177/2053951718824352

关键词: Big dataBusinessPrivacy by DesignInternet privacyMedical researchResearch settingInformed consent

摘要: Medical research data is sensitive personal that needs to be protected from unauthorized access and unintentional disclosure. In a setting, sharing of (big) within the scientific...

参考文章(5)
Hélène Nobile, Eric Vermeulen, Kristof Thys, Manuela M Bergmann, Pascal Borry, Why do participants enroll in population biobank studies? A systematic literature review Expert Review of Molecular Diagnostics. ,vol. 13, pp. 35- 47 ,(2013) , 10.1586/ERM.12.116
Rhoda C. Joseph, Data Breaches: Public Sector Perspectives IT Professional. ,vol. 20, pp. 57- 64 ,(2018) , 10.1109/MITP.2017.265105441
Mark Elliot, Kieron O'Hara, Charles Raab, Christine M. O'Keefe, Elaine Mackey, Chris Dibben, Heather Gowans, Kingsley Purdam, Karen McCullagh, Functional anonymisation: Personal data and the data environment Computer Law & Security Review. ,vol. 34, pp. 204- 221 ,(2018) , 10.1016/J.CLSR.2018.02.001
Tamar Sharon, When digital health meets digital capitalism, how many common goods are at stake?: Big Data & Society. ,vol. 5, pp. 2053951718819032- ,(2018) , 10.1177/2053951718819032
Helen Nissenbaum, A Contextual Approach to Privacy Online Daedalus. ,vol. 140, pp. 32- 48 ,(2011) , 10.1162/DAED_A_00113