Cross-Sectional Survey on Newborn Screening in Wisconsin Amish and Mennonite Communities

摘要: Old Order Amish and Mennonites, or Plain populations, are a growing minority in North America with unique health care delivery access challenges coupled higher frequencies of genetic disorders. The objective this study was to determine newborn screening use attitudes from western Wisconsin communities. A cross-sectional survey, an overall response rate 25 %, provided data representing 2010 children. In households children (n = 297), the 74 % all were screened 40 these households. Lack testing most common reason for not parental age inversely associated testing. majority respondents reported some more knowledge screening, viewed as important, had their Households who never received (26 %) lower favorable responses categories compared that at least one child screened. difference less marked between groups differences on consideration its importance. Moreover, 55 any being unlikely unsure future focus improving alongside establishing approaches change perceptions importance is necessary increasing