Families and Children with Severe Disabilities: Daily Lives, Systems, and Concerns.

摘要: This paper reviews the literature examining lifelong challenges to family members represented by birth of a child with severe disabilities. The addresses issues life, systems that affect families, and current future concerns related having Studies addressing families infants, toddlers, preschoolers disabilities are reviewed first. emotional stages experiences when first told has diagnosis disability discussed, along factors influence how parents reach acceptance stage. Factors include area degree disability, characteristics, strength available from system. daily young children face addressed different encounter described. then discusses secondary transition years, faced adolescents aging out educational system, they encounter. concludes system involvement, concern, life show little change early years years. (Contains 27 references.) (CR) Reproductions supplied EDRS best can be made original document.