Concerns and Expectations of Parents Seeking Subspecialist Care for Their Child's Short Stature.

摘要: Introduction Parents (PP) of children in primary care clinics previously reported factors influencing their height-related medical decision making. However, patients seeking endocrine subspecialty and parents (EP) differ demographically from the general population. Objective To determine EP concerns expectations, to compare between PP. Methods completed a survey assessing for child's height with identical questions asked PP two additional about growth hormone (GH) treatment. Results A greater proportion 166 (80% response rate) than 1,820 (83% surveyed was Caucasian (75% EP, 41% PP) privately insured 58% PP). Both groups rated treatment efficacy risks most as having bigor extreme impact on making (65% The second concern comparison peers or chart (60% 32% versus health (54% 56% Of surveyed, 76% GH potentially improving quality life (QoL), 88% reporting minimum 3-inch increase necessary improve QoL. Conclusions Height comparisons were more likely children. had high expectations QoL improvement treatment, which are unlikely be met idiopathic short stature. Thus, clinicians should prepared support families other ways that promote positive development