“I Will Do It If It Will Help Others:” Motivations Among Patients Taking Part in Qualitative Studies in Palliative Care
作者： Marjolein Gysels , Cathy Shipman , Irene J. Higginson
DOI: 10.1016/J.JPAINSYMMAN.2007.05.012
关键词: Nursing 、 Palliative care 、 Medicine 、 Autonomy 、 Context (language use) 、 Qualitative research 、 Altruism 、 Argument 、 Gratitude 、 Population
摘要: The aim of this study was to explore patients' and carers' preferences expectations regarding their contribution research in palliative care through the use qualitative interviews. Data were collected context two studies exploring experiences patients carers. Both recorded recruitment process, numbers or carers accepting declining, circumstances Participants asked about motivation participate research. data analyzed by labeling reflections on motivations for participating these identifying themes. Analysis process revealed differential patterns decline acceptance interviews with different conditions across settings. Among cancer patients, 21/51 declined; proportion other that declined small, 0/10 motor neuron disease. Motivation related (1) altruism, (2) gratitude concerns care, (3) need have somebody talk to, (4) information access services. Palliative capable deciding whether negotiating how they wanted happen. This strengthens argument autonomy Patients participation, reflecting heterogeneity population. suggests a ethics committees reconsider views widen perspectives involvement
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