Perceptions of terminally ill patients and family members regarding home and hospice as places of care at the end of life
作者： K.G. LUIJKX , J.M.G.A. SCHOLS
DOI: 10.1111/J.1365-2354.2010.01228.X
关键词: Nursing 、 Perception 、 Family medicine 、 Medicine 、 Terminally ill 、 Palliative care 、 MEDLINE 、 Negotiation 、 Life expectancy 、 Residence 、 Spouse
摘要: To enable demand-based palliative care, it is important to know the perceptions of terminally ill patients and their family members regarding home hospice as places care at end life. Eight women five men suffering from cancer with a life expectancy 3 months or less were interviewed. In each case one was also Four spent last phase home, nine in hospice. This paper provides further insight patient perspective care. The results reveal that cohabiting partner seems an prerequisite for stay home. For spouses obvious choice facilitate patients' even when becomes too demanding, something not discussed between spouse patient. When sufficient impossible negotiation opinion living no longer option, decided moves specific setting new residence be random; possibility pointed out them appropriate.
sci-hub.se 参考文章(24)
Magdalena Andersson, Ingalill R. Hallberg, Anna-Karin Edberg, Old people receiving municipal care, their experiences of what constitutes a good life in the last phase of life: A qualitative study International Journal of Nursing Studies. ,vol. 45, pp. 818- 828 ,(2008) , 10.1016/J.IJNURSTU.2007.04.003
Lauris C. Kaldjian, Ann E. Curtis, Laura A. Shinkunas, Katrina T. Cannon, Goals of care toward the end of life: a structured literature review. American Journal of Hospice and Palliative Medicine. ,vol. 25, pp. 501- 511 ,(2009) , 10.1177/1049909108328256
Dorthe Goldschmidt, Lone Schmidt, Allan Krasnik, Ulla Christensen, Mogens Groenvold, Expectations to and evaluation of a palliative home-care team as seen by patients and carers. Supportive Care in Cancer. ,vol. 14, pp. 1232- 1240 ,(2006) , 10.1007/S00520-006-0082-1
N Ahmed, J E Bestall, S H Ahmedzai, S A Payne, D Clark, B Noble, Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliative Medicine. ,vol. 18, pp. 525- 542 ,(2004) , 10.1191/0269216304PM921OA
Sara Arber, Jay Ginn, The Meaning of Informal Care: Gender and the Contribution of Elderly People Ageing & Society. ,vol. 10, pp. 429- 454 ,(1990) , 10.1017/S0144686X00007406
G Grande, G Ewing, Death at home unlikely if informal carers prefer otherwise: implications for policy. Palliative Medicine. ,vol. 22, pp. 971- 972 ,(2008) , 10.1177/0269216308098805
Barbara Gomes, Irene J. Higginson, Where people die (1974—2030): past trends, future projections and implications for care: Palliative Medicine. ,vol. 22, pp. 33- 41 ,(2008) , 10.1177/0269216307084606
Ireen M. Proot, Huda Huijer Abu-Saad, Harry F.J.M. Crebolder, Minke Goldsteen, Karen A. Luker, Guy A.M. Widdershoven, Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity. Scandinavian Journal of Caring Sciences. ,vol. 17, pp. 113- 121 ,(2003) , 10.1046/J.1471-6712.2003.00220.X
Curtis P. McLaughlin, Arnold D. Kaluzny, Building Client Centered Systems of Care: Choosing a Process Direction for the Next Century Health Care Management Review. ,vol. 25, pp. 73- 82 ,(2000) , 10.1097/00004010-200001000-00009
Katrien G. Luijkx, Jos M.G.A. Schols, Volunteers in Palliative Care Make A Difference Journal of Palliative Care. ,vol. 25, pp. 30- 39 ,(2009) , 10.1177/082585970902500104