Specialized adult congenital heart disease care: the impact of policy on mortality.

作者: Darren Mylotte , Louise Pilote , Raluca Ionescu-Ittu , Michal Abrahamowicz , Paul Khairy

DOI: 10.1161/CIRCULATIONAHA.113.005817

关键词: ReferralMedicineRate ratioCohort studyPediatricsMortality ratePopulationPoisson regressionConfidence intervalHeart disease

摘要: Background—Clinical guidelines recommend specialized care for adult congenital heart disease (ACHD) patients. In reality, few patients receive such dedicated care. We sought to …

参考文章(48)
Boris S. Lowe, Judith Therrien, Raluca Ionescu-Ittu, Louise Pilote, Giuseppe Martucci, Ariane J. Marelli, Diagnosis of Pulmonary Hypertension in the Congenital Heart Disease Adult Population: Impact on Outcomes Journal of the American College of Cardiology. ,vol. 58, pp. 538- 546 ,(2011) , 10.1016/J.JACC.2011.03.033
C A Warnes, J K Perloff, M S Connelly, L A Mercier, G D Webb, R R Liberthson, W G Williams, J P Finley, R L Collins-Nakai, V F Huckell, J Somerville, F J Puga, R McKay, Canadian Consensus Conference on Adult Congenital Heart Disease 1996. Canadian Journal of Cardiology. ,vol. 14, pp. 395- 452 ,(1998)
Michelle Gurvitz, Anne Marie Valente, Craig Broberg, Stephen Cook, Karen Stout, Joseph Kay, Jennifer Ting, Karen Kuehl, Michael Earing, Gary Webb, Linda Houser, Alexander Opotowsky, Amy Harmon, Dionne Graham, Paul Khairy, Ann Gianola, Amy Verstappen, Michael Landzberg, Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial). Journal of the American College of Cardiology. ,vol. 61, pp. 2180- 2184 ,(2013) , 10.1016/J.JACC.2013.02.048
Jonathan Afilalo, Judith Therrien, Louise Pilote, Raluca Ionescu-Ittu, Giuseppe Martucci, Ariane J. Marelli, Geriatric Congenital Heart Disease Journal of the American College of Cardiology. ,vol. 58, pp. 1509- 1515 ,(2011) , 10.1016/J.JACC.2011.06.041
H S Luft, S S Hunt, S C Maerki, The volume-outcome relationship: practice-makes-perfect or selective-referral patterns? Health Services Research. ,vol. 22, pp. 157- 182 ,(1987)
Marilyn J. Field, Kathleen N. Lohr, Clinical practice guidelines : directions for a new program National Academies Press (US). ,(1990)
Brahmajee K. Nallamothu, Hitinder S. Gurm, Henry H. Ting, Philip P. Goodney, Mary A. M. Rogers, Jeptha P. Curtis, Justin B. Dimick, Eric R. Bates, Harlan M. Krumholz, John D. Birkmeyer, Operator Experience and Carotid Stenting Outcomes in Medicare Beneficiaries JAMA. ,vol. 306, pp. 1338- 1343 ,(2011) , 10.1001/JAMA.2011.1357
Carole A Warnes, Richard Liberthson, Gordon K Danielson, Annie Dore, Louise Harris, Julien I.E Hoffman, Jane Somerville, Roberta G Williams, Gary D Webb, Task Force 1: the changing profile of congenital heart disease in adult life Journal of the American College of Cardiology. ,vol. 37, pp. 1170- 1175 ,(2001) , 10.1016/S0735-1097(01)01272-4
Candice K. Silversides, Annie Dore, Nancy Poirier, Dylan Taylor, Louise Harris, Matthias Greutmann, Lee Benson, Helmut Baumgartner, David Celermajer, Judith Therrien, Canadian Cardiovascular Society 2009 Consensus Conference on the management of adults with congenital heart disease: Shunt lesions Canadian Journal of Cardiology. ,vol. 26, ,(2010) , 10.1016/S0828-282X(10)70354-8
Mark A. Kotowycz, Judith Therrien, Raluca Ionescu-Ittu, Colum G. Owens, Louise Pilote, Giuseppe Martucci, Christo Tchervenkov, Ariane J. Marelli, Long-Term Outcomes After Surgical Versus Transcatheter Closure of Atrial Septal Defects in Adults Jacc-cardiovascular Interventions. ,vol. 6, pp. 497- 503 ,(2013) , 10.1016/J.JCIN.2012.12.126