What parents say about disclosing the end of their pregnancy due to fetal abnormality

摘要: Abstract Objective to describe men's and women's experiences of deciding whether tell people in their social network, including children, about pregnancy loss following a termination for fetal abnormality. Design secondary analysis qualitative narrative interview data informed by critical realist approach. Setting respondents were recruited throughout the United Kingdom interviewed at home between 2004 2005. Participants twenty-eight women nine men who had ended diagnosed with abnormality talked disclosing or not others. Findings few reported having any advice information how disclose termination. None said they completely concealed decision from adults network; most disclosed selectively, telling close friends family terminated acquaintances miscarried. Most young children that baby died but did reveal chosen end pregnancy. A minority told existing offspring loss. Common reasons given (partially) concealing were: guilt over decision; avoid being judged; protect other people's feelings. disclosure others knew pregnancy; needing time off work; practical help and/or emotional support during diagnosis termination; wanting recognition Positive consequences be getting more less criticism than expected; negative included anticipated empathy; encountering disapproval. Some felt resulted confusion cause parents' distress. found it hard access networks because expectations 'should' deal emotions. Key conclusions implications practice midwives have make difficult judgements what, when provide trying advise parents due Further education training this area could benefit. Midwives signpost sources around disclosure, taking into account individual preferences, consider potential concealment different ways disclosing. They also recommend alternative support, bearing mind particular may find harder networks.