How do adolescents adjust to their parent's multiple sclerosis? An interview study.

摘要: Objectives: the aim of this study was to explore how adolescents with a parent multiple sclerosis (MS) adjust their parents' illness. Design: we used an inductive qualitative approach open ended questions as appropriate facilitate development broad and child-centred understanding which resources they use cope challenges that are associated parental MS. Methods: fifteen semi-structured face-to-face interviews were conducted. Interviews audiotaped, transcribed, analysed using thematic analysis. Results: described both positive negative experiences related having Benefits MS included reports feeling more empathetic others grown-up. Negative impacts family tension, less time spend friends, worries about future. The support from well parent, siblings, friends found adolescents' adjustment. Adolescents assuming parenting role illness characteristics, such deterioration, relapses fatigue, challenged adjustment Conclusions: some adjusting MS, while appeared have difficulty. Whilst severity parent's deterioration symptoms play in adjustment, other potentially modifiable factors lack support, increased responsibilities, tension also posed barriers Support interventions may be helpful for vulnerable adolescents, consider individual