Descriptive study of partners' experiences of living with severe heart failure.

作者: Christopher C. Imes , Cynthia M. Dougherty , Gail Pyper , Mark D. Sullivan

DOI: 10.1016/J.HRTLNG.2010.12.007

关键词: DiseaseDescriptive researchQualitative researchSocial isolationDisease burdenMedicinePerspective (graphical)Heart failureNursingContent analysis

摘要: Abstract Purpose This qualitative study sought to describe the experiences of living with severe heart failure (HF) from perspective partner. Methods In-depth, semistructured interviews were conducted 14 partners individuals diagnosed HF. Content analysis was performed derive main themes and subthemes responses. Results Three derived data: (1) My Experience HF in Loved One, (2) With Healthcare Providers, (3) Patient’s as Perceived by Partner. Conclusion The severity patient’s disease limited partner’s lifestyle, resulting social isolation difficulties planning for future both the patient unprepared manage burden at home without consistent information assistance healthcare providers. Moreover, end-of-life neither encouraged providers nor embraced patients or partners.

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