作者: Lynn W Bush , Anita E Beck , Leslie G Biesecker , James P Evans , Ada Hamosh
DOI: 10.1038/GIM.2017.242
关键词: Genetic testing 、 Disclaimer 、 Context (language use) 、 Medical education 、 Psychology 、 Best practice 、 Personalized medicine 、 Medical genetics 、 Information Dissemination 、 Value (ethics)
摘要: Disclaimer: This Points to Consider document is designed as an educational resource provide best practices for medical genetic clinicians, laboratories, and journals regarding the provision, publication, dissemination of patient phenotypes in context genomic testing, clinical practice, research. While goal improvement care, considerations described should not be considered inclusive all proper or exclusive others that are reasonably directed obtaining same goal. In determining value any apply their own professional standards judgment specific circumstances presented.The content this article solely responsibility authors does necessarily represent official views authors' affiliated institutions.