Family communication about genetic risk: the little that is known.

作者: Brenda J. Wilson , Karen Forrest , Edwin R. van Teijlingen , Lorna McKee , Neva Haites

DOI: 10.1159/000080300

关键词: Sociocultural evolutionMEDLINEMedical geneticsGenetic testingGenetic counselingTruth DisclosureBioinformaticsBiologyFamily therapyDevelopmental psychologyNeed to know

摘要: … , the certainty of the predictive information available to individuals and the familiarity of the … reported in HNPCC families where interventions are available, the disease may carry less …

参考文章(76)
Josephine Green, Martin Richards, Frances Murton, Helen Statham, Nina Hallowell, Family Communication and Genetic Counseling: The Case of Hereditary Breast and Ovarian Cancer Journal of Genetic Counseling. ,vol. 6, pp. 45- 60 ,(1997) , 10.1023/A:1025611818643
F. Murton, H. Statham, M. Richards, J. Green, Management of breast cancer. Understand women's preconceptions. BMJ. ,vol. 308, pp. 716- 716 ,(1994) , 10.1136/BMJ.308.6930.716
Alison Pilnick, Genetics and society : an introduction Open University Press. ,(2002)
Claudine Isaacs, Caryn Lerman, Chanita Hughes, Beth N. Peshkin, Family Disclosure in Genetic Testing for Cancer Susceptibility: Determinants and Consequences Journal of health care law and policy. ,vol. 1, pp. 353- ,(1998)
Lily Pincus, Christopher Dare, Secrets in the family ,(1978)
Elizabeth Anionwu, Karl Atkin, Anionwu, The Politics of Sickle Cell and Thalassaemia ,(2001)
J Speice, SH McDaniel, PT Rowley, S Loader, Family issues in a psychoeducation group for women with a BRCA mutation. Clinical Genetics. ,vol. 62, pp. 121- 127 ,(2002) , 10.1034/J.1399-0004.2002.620204.X
I. Varekamp, T. Suurmeijer, F. R. Rosendaal, A. Bröcker-Vriends, Hemophilia and the use of genetic counseling and carrier testing within family networks. Birth defects original article series. ,vol. 28, pp. 139- 148 ,(1992)