作者: Marion Mathieu , Constance Hammond , David G. Karlin
DOI: 10.1371/JOURNAL.PBIO.1002067
关键词: Patient participation 、 Training program 、 Medical education 、 Biology 、 Research design 、 General partnership 、 Disease 、 Research process
摘要: Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based sessions for members of groups. These allow “trainees” to better understand their disease the biomedical research process, strengthen links patients local researchers. Over past decade, we our partner institutes have received more than 900 French patients, with participation over 60 researchers clinicians.