Child’s objection to non-beneficial research: capacity and distress based models

作者: Marcin Waligora , Joanna Różyńska , Jan Piasecki

DOI: 10.1007/S11019-015-9643-8

关键词: PsychologyDissentLawMedical lawPhilosophy of medicineAlternative medicinePhilosophy of biologyResearch capacityDistressProcess (engineering)

摘要: A child's objection, refusal and dissent regarding participation in non-beneficial biomedical research must be respected, even when the parents or legal representatives have given …

参考文章(28)
IAIN BRASSINGTON, Defending the duty to research Bioethics. ,vol. 25, pp. 21- 26 ,(2011) , 10.1111/J.1467-8519.2009.01745.X
Linus Broström, Mats Johansson, Involving children in non-therapeutic research: on the development argument. Medicine Health Care and Philosophy. ,vol. 17, pp. 53- 60 ,(2014) , 10.1007/S11019-013-9486-0
Lee L. Zwanziger, Crossing Perspectival Chasms about Species American Journal of Bioethics. ,vol. 3, pp. 9- 10 ,(2003) , 10.1162/15265160360706723
David Wendler, Seema Shah, Should children decide whether they are enrolled in nonbeneficial research American Journal of Bioethics. ,vol. 3, pp. 1- 7 ,(2003) , 10.1162/152651603322614382
Jan Piasecki, Marcin Waligora, Vilius Dranseika, Non-beneficial pediatric research: individual and social interests. Medicine Health Care and Philosophy. ,vol. 18, pp. 103- 112 ,(2015) , 10.1007/S11019-014-9586-5
Priscilla Alderson, Competent children? Minors' consent to health care treatment and research. Social Science & Medicine. ,vol. 65, pp. 2272- 2283 ,(2007) , 10.1016/J.SOCSCIMED.2007.08.005
Loretta M. Kopelman, On Justifying Pediatric Research Without the Prospect of Clinical Benefit American Journal of Bioethics. ,vol. 12, pp. 32- 34 ,(2012) , 10.1080/15265161.2011.635918
Marcin Waligora, Vilius Dranseika, Jan Piasecki, Child’s assent in research: Age threshold or personalisation? BMC Medical Ethics. ,vol. 15, pp. 44- 44 ,(2014) , 10.1186/1472-6939-15-44
Stuart Rennie, Viewing research participation as a moral obligation: in whose interests? Hastings Center Report. ,vol. 41, pp. 40- 47 ,(2011) , 10.1353/HCR.2011.0025
Irma M. Hein, Pieter W. Troost, Robert Lindeboom, Marc A. Benninga, C. Michel Zwaan, Johannes B. van Goudoever, Ramón J. L. Lindauer, Accuracy of the MacArthur Competence Assessment Tool for Clinical Research (MacCAT-CR) for measuring children's competence to consent to clinical research JAMA Pediatrics. ,vol. 168, pp. 1147- 1153 ,(2014) , 10.1001/JAMAPEDIATRICS.2014.1694