Using goal-directed design to create a novel system for improving chronic illness care.

摘要: Background: A learning health system enables patients, clinicians, and researchers to work together choose care based on the best evidence, drive discovery as a natural outgrowth of patient care, ensure innovation, quality, safety, value in care; all more real-time fashion. Objective: Our paper describes how goal-directed design (GDD) methods were employed understand context goals potential participants such part process translate concept into prototype collaborative chronic network (C3N), specifically for pediatric inflammatory bowel disease. Methods: Thirty-six one-on-one in-depth interviews observations conducted with patients (10/36, 28%), caregivers physicians/researchers nurses (6/36, 17%) from gastroenterology center participating ImproveCareNow network. GDD used determine participants. These same conjunction idealized techniques help characteristics this ecology. Research was clinic and, case some caregivers, at home. Results: Thematic analysis revealed 3 parent-child dyad personas (ie, representations interviewees’ behavior patterns, goals, skills, attitudes, contextual information) that represented adaptation illness over time. generate scenarios (potential interactions between under design) which requirements derived. turn helped guide generation, prioritization, design, measurement, implementation approximately 100 interventions consistent aim C3N becoming Conclusions: human contexts inform reflect shape purpose care. Developing online in-person according well-documented motivations increases likelihood will enable act ways achieve their grace dignity. complemented quality-improvement prototypes clinical research aims, well disease management. [JMIR Res Protoc 2013;2(2):e43]