作者: Elena E. Perez
DOI: 10.1016/B978-0-12-405546-9.00062-5
关键词: Point (typography) 、 The Internet 、 Interactive search 、 Knowledge management 、 Diagnostic tools 、 Medicine 、 Professional association
摘要: There are many resources emerging for the modern clinical immunologist taking care of patients with primary immunodeficiency diseases, and also those researching these rare diseases. Resources include websites, professional patient organizations, interactive search tools, databases, list serves. This chapter offers an overview available today. The is divided into sections covering registries, clinical/diagnostic research, advocacy/patient organizations. Many websites now share links each other, point to other important useful not covered in detail here.