What is a good death? Stories from palliative care.
作者： Jennifer D. De Jong , Linda E. Clarke
DOI: 10.1177/082585970902500107
关键词: Psychology 、 Family medicine 、 MEDLINE 、 Narrative 、 Value (ethics) 、 Patient satisfaction 、 Form of the Good 、 Palliative care 、 Meaning (existential) 、 Sense of community
摘要: The components of good and bad deaths have not been well elucidated in the literature. Furthermore, value using narratives palliative care research has extensively explored. We invited people involved (patients, caregivers, physicians, nurses) to tell us their stories deaths, 15 responded. asked them about that they had witnessed describe what a death would be like for them, personally. Several common themes emerged from narratives: free pain, sense life lived, community. Common included painful loss control independence. found use story provided an opportunity create meaning heal both teller listener.
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sci-hub.se 参考文章(27)
Elizabeth K. Vig, Robert A. Pearlman, Good and Bad Dying From the Perspective of Terminally Ill Men Archives of Internal Medicine. ,vol. 164, pp. 977- 981 ,(2004) , 10.1001/ARCHINTE.164.9.977
Elizabeth K. Vig, Nathaniel A. Davenport, Robert A. Pearlman, Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients Journal of the American Geriatrics Society. ,vol. 50, pp. 1541- 1548 ,(2002) , 10.1046/J.1532-5415.2002.50410.X
John F. Steiner, The Use of Stories in Clinical Research and Health Policy JAMA. ,vol. 294, pp. 2901- 2904 ,(2005) , 10.1001/JAMA.294.22.2901
Sayantani DasGupta, Rita Charon, Personal illness narratives: using reflective writing to teach empathy. Academic Medicine. ,vol. 79, pp. 351- 356 ,(2004) , 10.1097/00001888-200404000-00013
Elizabeth M. Wessel, Maryanne Garon, Introducing reflective narratives into palliative care home care education. Home Healthcare Nurse: The Journal for The Home Care and Hospice Professional. ,vol. 23, pp. 516- 522 ,(2005) , 10.1097/00004045-200508000-00012
J. Clark, Patient centred death BMJ. ,vol. 327, pp. 174- 175 ,(2003) , 10.1136/BMJ.327.7408.174
Bronna D. Romanoff, Barbara E. Thompson, Meaning construction in palliative care: the use of narrative, ritual, and the expressive arts. American Journal of Hospice and Palliative Medicine. ,vol. 23, pp. 309- 316 ,(2006) , 10.1177/1049909106290246
Rita Charon, Narrative and Medicine The New England Journal of Medicine. ,vol. 350, pp. 862- 864 ,(2004) , 10.1056/NEJMP038249
Peter A. Singer, Douglas K. Martin, Merrijoy Kelner, Quality End-of-Life Care JAMA. ,vol. 281, pp. 163- 168 ,(1999) , 10.1001/JAMA.281.2.163
Mary-Jo DelVecchio Good, Nina M Gadmer, Patricia Ruopp, Matthew Lakoma, Amy M Sullivan, Ellen Redinbaugh, Robert M Arnold, Susan D Block, Narrative nuances on good and bad deaths: internists’ tales from high-technology work places Social Science & Medicine. ,vol. 58, pp. 939- 953 ,(2004) , 10.1016/J.SOCSCIMED.2003.10.043