Cross-cultural perspectives on research participation and informed consent

摘要: This study examined Portuguese Canadian and Caribbean immigrants' perceptions of health research informed consent procedures. Six focus groups (three in each cultural group) involving 42 participants two individual interviews were conducted. The began with a general question about research. was followed by three short role-plays between the moderator assistant. involved fictional which patient is approached for recruitment, read form, asked to sign. stopped at key moments time group questions their understanding perceptions. Focus transcripts coded QSR NUDIST software using open coding then compared across groups. overriding themes emerged: common both transcripts, one emphasized importance trust mistrust, other highlighted need desire more information However, these expressed somewhat differently In addition, there four that specific only group. groups, an overwhelming positive regard process emphasis on verbal as opposed written information. qualified participation studies repeatedly raised images invasive