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Making genetics not so important: families dealing with genetic testing for a familial heart disease
作者: E.G.M. Geelen
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narcis.nl
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maastrichtuniversity.nl
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参考文章
(81)
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Sahra Gibbon,
Breast Cancer Genes and the Gendering of Knowledge: Science and Citizenship in the Cultural Context of the 'New' Genetics
,(2006)
2.
Karen-Sue Taussig,
Ordinary Genomes: Science, Citizenship, and Genetic Identities
,(2009)
3.
George J. Agich,
Autonomy and long term care
,(1993)
4.
Vinh-Kim Nguyen, Margaret Lock,
An Anthropology of Biomedicine
,(2018)
5.
Daniel Callahan,
What Kind of Life: The Limits of Medical Progress
,(1991)
6.
Kaja Finkler,
Experiencing the New Genetics: Family and Kinship on the Medical Frontier
,(2000)
7.
E. Marshall,
Genetics. Sequencers of a famous genome confront privacy issues.
Science.
,vol. 315, pp. 1780- 1780 ,(2007) ,
10.1126/SCIENCE.315.5820.1780
8.
Janet Finch, Jennifer Mason,
Negotiating family responsibilities
,(1992)
9.
S Treloar, K Barlow-Stewart, Mja Stranger, Otlowski, S Taylor,
Investigating genetic discrimination in Australia: Perceptions and experiences of Clinical Genetics Service clients regarding coercion to test, insurance and employment
Australian Journal of Emerging Technologies and Society.
,vol. 5, pp. 63- 83 ,(2007)
10.
Kira A Apse, Barbara B Biesecker, Francis M Giardiello, Barbara P Fuller, Barbara A Bernhardt,
Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients
Genetics in Medicine.
,vol. 6, pp. 510- 516 ,(2004) ,
10.1097/01.GIM.0000144013.96456.6C
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Datawyse / Universitaire Pers Maastricht
2013 年,
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