Vécu et représentations de la maladie des patients pensant être atteints de la maladie de Lyme
作者： Fanny Gonnet , Amélie Revil Signorat
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摘要: La borreliose de Lyme est la plus connue des pathologies vectorielles transmises par les tiques. Son diagnostic et son traitement sont sources controverse discours alarmistes en France aux Etats-Unis. Le but cette etude a ete d'explorer le vecu representations maladie patients pensant etre atteints dont corps medical refute ce diagnostic. Il s'agit d'une qualitative entretiens individuels semi-diriges aupres treize avait diagnostic, recrutes via une association malades sur Internet. Ils ont menes deux chercheuses, verbatim integralement retranscrits codes double aveugle. Une analyse thematique dans approche phenomenologique realisee jusqu'au consensus afin d'obtenir triangulation donnees. Notre montre que construisent seuls leur differents elements, informations issues autres communautes vecue comme insidieuse, incurable, cause exogene necessitant un complexe. L'origine psychique maux souvent proposee rejetee. patient acteur sa prise charge, entrainant perte du role paternaliste medecin. Leur long parcours soin bataille mener pour reconnaissance leurs symptomes societe. L'amelioration charge ces symptomes, l'accompagnement sensibilisation critique recues parait fondamentale.
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