作者: Anne C. Madeo , Barbara B. Biesecker , Campbell Brasington , Lori H. Erby , Kathryn F. Peters
DOI: 10.1002/AJMG.A.34054
关键词:
摘要: Since the inception of field genetic counseling, profession has had a tenuous relationship with disability community. Genetic counselors both offer prenatal diagnostic testing that allows individuals opportunity to avoid birth child and they advocate for rights who have disability. Some in community argued feel their lives disabled families judged by diagnosis attitudes service providers encounter clinical settings. Select voices from fear result developing technologies may contribute world less tolerant disabilities. The available empirical data suggest do little counteract these perspectives. Although limited, investigations into practices more negative perspective on disabilities than whose are directly affected them affect description disabling conditions setting. National Society Counselors, organization represents US publicly aligned itself abortion over disease advocacy organizations, thus subjecting perception bias. We possible solutions criticisms argue individually collectively, counseling professionals should develop identify opportunities fully support needs broader spectrum clients.