Digital health fiduciaries: protecting user privacy when sharing health data

摘要: Wearable self-tracking devices capture multidimensional health data and offer several advantages including new ways of facilitating research. However, they also create a conflict between individual interests avoiding privacy harms, collective assembling using large sets for public benefits. While some scholars argue transparency accountability mechanisms to resolve this conflict, an average user is not adequately equipped access process information relating the consequences consenting further uses her data. As alternative, paper argues fiduciary relationships, which put deliberative demands on digital controllers keep their subjects at forefront as well cater contextual nature privacy. These requirements ensure that users can engage in participation share lower risk harms. This proposes way balance flexible open-ended law with specific scope duties should owe subjects.