作者: Gabriel M Ronen , Peter L Rosenbaum , Michael H Boyle , David L Streiner , None
DOI: 10.1016/J.YEBEH.2018.05.009
关键词:
摘要: In the 21st century, clinicians are expected to listen to, and understand their patients' views about, conditions effects that these have on functioning, values, life goals, welfare. The goals of this review as follows: (i) inform, update, guide caring for children with epilepsy about developments in content new methods research patient-reported outcomes, quality life, functioning; (ii) discuss value using concepts explore impact diverse interventions implemented daily practice. Drawing literature our program over past two decades, we focus current understanding a variety health recently acquired knowledge significance lives patients families. We advantages measuring outcomes tell us what is important patients. advise characteristics look when choosing measure, relevance considerations. addition, address gaps causes confusion limited use clinical