Information Needs and Decisional Preferences in Women With Breast Cancer

作者: Lesley F Degner , Linda J Kristjanson , David Bowman , Jeffrey A Sloan , KC Carriere

DOI: 10.1001/JAMA.1997.03540420081039

关键词:

摘要: Objective. —To determine the degree of involvement women with breast cancer wanted in medical decision making, extent to which they believed had achieved their preferred level involvement, and types information judged be most important. Design Setting. —Cross-sectional survey at 2 tertiary oncology referral clinics community hospital Winnipeg, Manitoba. Patients. —Consecutive sample 1012 a confirmed diagnosis who were scheduled for visit 1 4 clinics. Main Outcome Measures. —The following measures used: (1) Preferences about various levels participation treatment making; (2) subjects (3) priority needs how these differed by selected sociodemographic, disease, variables. Results. —A total 22% select own treatment, 44% collaboratively physicians, 34% delegate this responsibility physicians. Only 42% control making. The highly ranked related knowing chances cure spread disease. Women younger than 50 years rated physical sexual attractiveness as more important did older ( P =.002); positive family history risk other =.03). Conclusions. substantial discrepancy between women's attained making suggests that systematic approaches assess respond desired need evaluated. Priorities identified study provide an empirical basis guide communication seeking care cancer.

参考文章(32)
L F Degner, B A Bilodeau, Information needs, sources of information, and decisional roles in women with breast cancer. Oncology Nursing Forum. ,vol. 23, pp. 691- 696 ,(1996)
Dick Ja, Degner Lf, Neufeld Kr, A nursing intervention strategy to foster patient involvement in treatment decisions. Oncology Nursing Forum. ,vol. 20, pp. 631- ,(1993)
L F Degner, T R Morgan, B J Davison, Information and decision-making preferences of men with prostate cancer. Oncology Nursing Forum. ,vol. 22, pp. 1401- 1408 ,(1995)
Lesley F. Degner, Janet I. Beaton, Life-death decisions in health care ,(1987)
S. Batt, M. Waller, Advocacy groups for breast cancer patients Canadian Medical Association Journal. ,vol. 152, pp. 829- 833 ,(1995)
H J Sutherland, H A Llewellyn-Thomas, G A Lockwood, D L Tritchler, J E Till, Cancer patients: their desire for information and participation in treatment decisions. Journal of the Royal Society of Medicine. ,vol. 82, pp. 260- 263 ,(1989) , 10.1177/014107688908200506
L A Siminoff, J H Fetting, M D Abeloff, Doctor-patient communication about breast cancer adjuvant therapy Journal of Clinical Oncology. ,vol. 7, pp. 1192- 1200 ,(1989) , 10.1200/JCO.1989.7.9.1192
B. Jo Hailey, Betsy Lavine, Beth Hogan, The Mastectomy Experience Women & Health. ,vol. 14, pp. 75- 88 ,(1988) , 10.1300/J013V14N01_06
PHYLLIS LAUER, SUZANNE P. MURPHY, MARJORIE J. POWERS, Learning needs of cancer patients: a comparison of nurse and patient perceptions. Nursing Research. ,vol. 31, pp. 11- 16 ,(1982) , 10.1097/00006199-198201000-00003
Marylin J. Dodd, Nadia Ahmed, Preference for type of information in cancer patients receiving radiation therapy. Cancer Nursing. ,vol. 10, pp. 244- 251 ,(1987) , 10.1097/00002820-198710000-00002