“I need to know if I’m going to die young”: Adolescent and young adult experiences of genetic testing for Li–Fraumeni syndrome
作者： Rowan Forbes Shepherd , Allison Werner-Lin , Louise A. Keogh , Martin B. Delatycki , Laura E. Forrest
DOI: 10.1080/07347332.2020.1768199
关键词:
摘要: … genetic counseling. Three participants were tested under the age of 15 years and learnt of their mutation status during early adolescence from their parents (n = 1) or with their parents …
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