Hearing the voices of children with chronic illness

作者: Samantha A. Sartain , Charlotte L. Clarke , R. Heyman

DOI: 10.1046/J.1365-2648.2000.T01-1-01556.X

关键词:

摘要: This qualitative study has aimed to explore children's, parents' and health professionals' experience of childhood chronic illness. Seven families their professional carers participated in semistrucured interviews. The children's interviews were augmented with a 'drawing' technique. A grounded theory approach facilitated data collection analysis. paper debates the perceived passivity voice children care research illustrates methods that seek give other disadvantaged groups voice. who this are described as competent interpreters world.

参考文章(20)
Ellen C. Perrin, P. Susan Gerrity, Development of Children With a Chronic Illness Pediatric Clinics of North America. ,vol. 31, pp. 19- 31 ,(1984) , 10.1016/S0031-3955(16)34533-3
Graham Upton, Ved P. Varma, Ronald Davie, The Voice Of The Child: A Handbook For Professionals ,(1996)
Edward Purssell, Living With a Sick Child in Hospital Journal of Advanced Nursing. ,vol. 21, pp. 809- 809 ,(1995) , 10.1046/J.1365-2648.1995.21040809.X
Tamar Krulik, Successful 'normalizing' tactics of parents of chronically-ill children. Journal of Advanced Nursing. ,vol. 5, pp. 573- 578 ,(1980) , 10.1111/J.1365-2648.1980.TB03188.X
Lorraine Ireland, Immy Holloway, Qualitative Health Research with Children Children & Society. ,vol. 10, pp. 155- 164 ,(1996) , 10.1111/J.1099-0860.1996.TB00465.X
Sally E. Thorne, Carole A. Robinson, Health care relationships: the chronic illness perspective. Research in Nursing & Health. ,vol. 11, pp. 293- 300 ,(1988) , 10.1002/NUR.4770110504
Kathy Charmaz, 'Discovering' chronic illness: using grounded theory Social Science & Medicine. ,vol. 30, pp. 1161- 1172 ,(1990) , 10.1016/0277-9536(90)90256-R
Frances Chaput Waksler, STUDYING CHILDREN: PHENOMENOLOGICAL INSIGHTS* Human Studies. ,vol. 9, pp. 71- 82 ,(1986) , 10.1007/BF00142910