Health-Related Stigma in Young Adults With Sickle Cell Disease

作者: Coretta M. Jenerette , Cheryl Brewer

DOI: 10.1016/S0027-9684(15)30732-X

关键词:

摘要: Health-related stigma is increasingly becoming a major public health issue that receiving more attention. Young adults with sickle cell disease (SCD) are at risk for health-related stigmatization due to the many challenges of disease. SCD includes lifelong managing chronic illness while accessing and navigating care system. The burdens can affect all aspects lives individuals include physiological, psychological, social well-being. Although others may be involved in process stigmatization, purpose this paper was support need develop patient-oriented interventions prevent treat young SCD, as these face throughout their lives, but especially immediately after transitioning from pediatric adult care. Additionally, Revised Theory Self-Care Management Sickle Cell Disease offered framework which theory-based derived.

参考文章(70)
J Waters, V Thomas, Pain from sickle-cell crisis. Nursing times. ,vol. 91, pp. 29- 31 ,(1995)
Understanding and tackling health-related stigma. Psychology Health & Medicine. ,vol. 11, pp. 269- ,(2006) , 10.1080/13548500600594908
Maxwell K, Streetly A, Living with sickle cell pain. Nursing Standard. ,vol. 13, pp. 33- ,(1998)
Strickland Ol, Jackson G, McGuire Db, Quarles S, Gilead M, Use of focus groups for pain and quality of life assessment in adults with sickle cell disease. Journal of National Black Nurses' Association: JNBNA. ,vol. 12, pp. 36- 43 ,(2001)
Troy Guthrie, Nahed Nagib, Steven H. Yale, Approach to the vaso-occlusive crisis in adults with sickle cell disease. American Family Physician. ,vol. 61, pp. 1349- 1356 ,(2000)
M. E. Broome, P. Bailey, S. Kelber, G. Lea, V. Maikler, An intervention to increase coping and reduce health care utilization for school-age children and adolescents with sickle cell disease. Journal of National Black Nurses' Association: JNBNA. ,vol. 12, pp. 6- 14 ,(2001)
K. Burlew, Factors That Influence Adolescent Adaptation to Sickle Cell Disease Journal of Pediatric Psychology. ,vol. 25, pp. 287- 299 ,(2000) , 10.1093/JPEPSY/25.5.287
Susan Carolyn Slade, Elizabeth Molloy, Jennifer Lyn Keating, Stigma experienced by people with nonspecific chronic low back pain: a qualitative study. Pain Medicine. ,vol. 10, pp. 143- 154 ,(2009) , 10.1111/J.1526-4637.2008.00540.X
Virginia Egbert Maikler, Marion E. Broome, Patricia Bailey, Gwen Lea, Childrens' and adolescents' use of diaries for sickle cell pain. Journal for Specialists in Pediatric Nursing. ,vol. 6, pp. 161- 169 ,(2001) , 10.1111/J.1744-6155.2001.TB00240.X
Zoran Martinovich, Judith A. Paice, Amy Zosel, Paula Tanabe, Jane H Brice, Knox H. Todd, Julia Evans, Altaf H. Ansari, Randall Myers, Emergency Department Management of Acute Pain Episodes in Sickle Cell Disease Academic Emergency Medicine. ,vol. 14, pp. 419- 425 ,(2007) , 10.1197/J.AEM.2006.11.033