Autobiologies on YouTube: Narratives of Direct-to-Consumer Genetic Testing

摘要: Despite a growing personal genomics market, little is known about how people engage with the possibilities offered by direct-to-consumer (DTC) genetic testing. In order to help address this gap, study deploys narrative analysis of YouTube videos posted individuals who have purchased DTC testing for disease. Genetic said be contributing new states illness, where may become “patients-in-waiting.” analyzed, we found form storytelling ambiguous state which refer as autobiology. Autobiology – of, and story about, one's own biology concerns narratives sense-making through forms biological practice, well wayfaring interweave markers family histories These autobiologies part broader shift toward public stories genetics other healthcare technologies exhibit playfulness, being bound consumerist practices.