Nurse-led cancer genetics clinics in primary and secondary care in varied ethnic population areas: interaction with primary care to improve ascertainment of individuals from ethnic minorities.

摘要: Genetic services are receiving increasing numbers of referrals people with a family history cancer for assessment genetic risk, and therefore need to find cost-effective ways meeting this rising demand. General Practitioners (GPs) known be reluctant take on consultations. Current evidence suggests that black ethnic minorities poorly represented in genetics clinics. Nurse-led clinics primary care have been found successful. This paper reports pilot study test the feasibility, accessibility, effectiveness providing nurse-counsellor secondary SW Thames Region. We initially set up three nurse-led general practices two district hospitals very different catchment areas. The service was advertised by displaying posters leaflets, translated into languages. Self-referrals were encouraged. user involvement sub-group held focus group meetings assess barriers to, satisfaction with, service. A patient questionnaire designed administered after appointments. also GP survey regarding Data referrals, including their source outcome, recorded purpose-designed database. received all over course pilot. Of 137 23 (17%) from minorities, whom 17/23 (74%) self-referred, compared 102 British White 91/102 (89%) self-referred. Sixty-two patients (45%) assessed at population risk reassured, 60 (44%) moderate 15 (11%) high referred appropriate management. These proportions similar minority patients. Most reported