Cerebral palsy registries
作者： Christine Cans , Geraldine Surman , Vicki McManus , David Coghlan , Owen Hensey
DOI: 10.1016/J.SPEN.2004.01.004
关键词:
摘要: Cerebral palsy (CP) registers appear to be appropriate tools for answering questions regarding the prevalence and characteristics of this common childhood disability. Registers are population databases issuing from multiple sources, relying on a clear definition inclusion exclusion criteria CP, requiring mix skills with collaboration obstetricians, pediatricians, epidemiologists. In Europe alone there 18 different CP or data collections collaborative research efforts exist through European network. Data collection has also been done in Australia (register), United States (surveys), Canada (register). Beside monitoring trends, other public health contributions might reduce frequency improve quality life children CP. useful clinicians by enabling them identify subgroups specific etiologic investigations, provide more accurate information parents
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