Genetic Counseling Service Delivery Models in the United States: Assessment of changes in use from 2010 to 2017

作者: Samantha E. Greenberg , Emily Boothe , Christine L. Delaney , Ryan Noss , Stephanie A. Cohen

DOI: 10.1002/JGC4.1265

关键词:

摘要: In 2010, the National Society of Genetic Counselors (NSGC) membership was surveyed about their use genetic counseling service delivery models (SDMs) including in-person, telephone, telegenetics, and group counseling. Since that time, demand for services has increased in United States (US). We hypothesized various SDMs to help address growing demand. To assess changes SDM interest implementing innovative SDMs, NSGC subcommittee sent an electronic survey (N = 3,616), which open from August 2017 December 2017. Descriptive statistics chi-square analysis were used compare identify differences utilization between 2010 There 590 total responses (16.3% response rate) with 517 usable responses, representing multiple specialties. Compared significantly fewer respondents indicated they 'always' provide in-person (p < .04, df = 4), 92.6% reporting or 'often' utilizing Telephone reported by 12.5% as a model always often, compared 8% 2010; however, shift toward away telephone since not statistically significant (p = .27, df = 4). The number using telegenetics often 2.3% 6.7% 2017, more report at frequency (p < .01, contrast, those decreased 3.0% 1.4%, though there (p = .21, Almost all (93%) interested additional and/or different SDM; many (74%) identified barriers implementation. increase 3 4 practice (p < .02). counselors may be attempting compensate longer wait times improve access patients. is strong learning efficiency. However, resources need developed overcome implementation achieve these goals.

参考文章(19)
Stephanie A. Cohen, Monica L. Marvin, Bronson D. Riley, Hetal S. Vig, Julie A. Rousseau, Shanna L. Gustafson, Identification of Genetic Counseling Service Delivery Models in Practice: A Report from the NSGC Service Delivery Model Task Force Journal of Genetic Counseling. ,vol. 22, pp. 411- 421 ,(2013) , 10.1007/S10897-013-9588-0
Adam H. Buchanan, Santanu K. Datta, Celette Sugg Skinner, Gail P. Hollowell, Henry F. Beresford, Thomas Freeland, Benjamin Rogers, John Boling, P. Kelly Marcom, Martha B. Adams, Randomized Trial of Telegenetics vs. In-Person Cancer Genetic Counseling: Cost, Patient Satisfaction and Attendance Journal of Genetic Counseling. ,vol. 24, pp. 961- 970 ,(2015) , 10.1007/S10897-015-9836-6
Beth Anderson, Jennifer McLosky, Elizabeth Wasilevich, Sarah Lyon-Callo, Debra Duquette, Glenn Copeland, Barriers and Facilitators for Utilization of Genetic Counseling and Risk Assessment Services in Young Female Breast Cancer Survivors Journal of Cancer Epidemiology. ,vol. 2012, pp. 298745- 298745 ,(2012) , 10.1155/2012/298745
Stephanie A. Cohen, Shanna L. Gustafson, Monica L. Marvin, Bronson D. Riley, Wendy R. Uhlmann, S. Bonnie Liebers, Julie A. Rousseau, Report from the National Society of Genetic Counselors Service Delivery Model Task Force: A Proposal to Define Models, Components, and Modes of Referral Journal of Genetic Counseling. ,vol. 21, pp. 645- 651 ,(2012) , 10.1007/S10897-012-9505-Y
Marc D. Schwartz, Heiddis B. Valdimarsdottir, Beth N. Peshkin, Jeanne Mandelblatt, Rachel Nusbaum, An-Tsun Huang, Yaojen Chang, Kristi Graves, Claudine Isaacs, Marie Wood, Wendy McKinnon, Judy Garber, Shelley McCormick, Anita Y. Kinney, George Luta, Sarah Kelleher, Kara-Grace Leventhal, Patti Vegella, Angie Tong, Lesley King, Randomized Noninferiority Trial of Telephone Versus In-Person Genetic Counseling for Hereditary Breast and Ovarian Cancer Journal of Clinical Oncology. ,vol. 32, pp. 618- 626 ,(2014) , 10.1200/JCO.2013.51.3226
Martin Gulliford, Jose Figueroa-Munoz, Myfanwy Morgan, David Hughes, Barry Gibson, Roger Beech, Meryl Hudson, What does 'access to health care' mean?: Journal of Health Services Research & Policy. ,vol. 7, pp. 186- 188 ,(2002) , 10.1258/135581902760082517
Lindsey Mette, Anna Saldivar, Natalie Poullard, Ivette Torres, Sarah Seth, Brad Pollock, Gail Tomlinson, Reaching high-risk underserved individuals for cancer genetic counseling by video-teleconferencing. The Journal of community and supportive oncology. ,vol. 14, pp. 162- 168 ,(2016) , 10.12788/JCSO.0247
Adam Hudson Buchanan, Alanna Kulchak Rahm, Janter L. Williams, Alternate Service Delivery Models in Cancer Genetic Counseling: A Mini-Review. Frontiers in Oncology. ,vol. 6, pp. 120- 120 ,(2016) , 10.3389/FONC.2016.00120
Jennifer R. Leonhard, Paul J. Munson, Jason D. Flanagan, Kristen L. De Berg, Paul A. Thompson, Lori W. Dean, Quinn P. Stein, Analysis of Reimbursement of Genetic Counseling Services at a Single Institution in a State Requiring Licensure Journal of Genetic Counseling. ,vol. 26, pp. 852- 858 ,(2017) , 10.1007/S10897-016-0062-7
Shobana Kubendran, Siddharthan Sivamurthy, Gerald Bradley Schaefer, A novel approach in pediatric telegenetic services: geneticist, pediatrician and genetic counselor team Genetics in Medicine. ,vol. 19, pp. 1260- 1267 ,(2017) , 10.1038/GIM.2017.45