Home and health in people ageing with Parkinson’s disease: study protocol for a prospective longitudinal cohort survey study

摘要: With an increased life expectancy for the general population as well those ageing with chronic diseases, there are major challenges to affected individuals and their families, but also health care societal planning. Most important, increasing proportion of older people remain living in ordinary homes despite decline disability. However, little is known about home situation Parkinson’s disease (PD), often excluded from PD-research. The overall aim present project generate knowledge on dynamics PD, explicit attention PD-specific symptomatology. We will concentrate aspects captured by state-of-the-art methodology gerontology PD-research, science rehabilitation. This study protocol describes a longitudinal cohort survey that includes baseline data collection 3-year follow-up. Both waves include self-administered questionnaires, structured interviews, clinical assessments observations during visits effectuated research staff project-specific training. In order arrive at follow-up sample N=160, 250 participants identified PD specialist nurses being recruited three hospitals southern Sweden. no lower or upper age limit, only diagnosed since least one year were included. exclusion criteria were: difficulties understanding speaking Swedish and/or cognitive difficulties/other reasons making individual unable give informed consent take part majority collection. targets environmental factors such assistive devices, social support, physical barriers, accessibility problems perceived home. A broad variety instruments tap (e.g. freezing gait, fear falling) health-related issues self-efficacy, body functions, activities participation. produce benefit development planning ultimately promoting activity participation increase number healthy years this sub-group population.