Comparing regional models of congenital bleeding disorders: preliminary steps in the Italian context

摘要: Among these diseases, congenital bleeding disorders (CBD) represent a significant societal burden in terms of high morbidity costs and health outcomes. In Italy, the organization provision care is regional responsibility regions must assure equity quality to all their residents. This also true for CBD which provided by 54 multidisciplinary Hemophilia Treatment Centers (HTCs) distributed among regions. With present study, we intend stimulate debate on effect that decentralization process have delivery services patients across Italy. The available comparable measures caseloads per center interregional patient mobility, as proxies responsiveness network HTCs, were first analyzed using data from Italian Association year 2012. Nine thousand one hundred thirty four residents with received at least HTC Preliminary findings suggested room improvement patients. 2012, 16 HTCs out 51 (31.4%) treated number under minimum requirement treatment accreditation (10 severe patients). Moreover, mobility highlighted differences ability each region retain its own or attract other study results showed disparities volumes CBDs cannot be completely explained different geographical characteristics. Therefore, central government should consider taking concrete bridge gap between access individuals independently where they live therefore move toward more integrated homogeneous national centers. Typology disease, patients’ needs, cost outcomes, priority political agenda. For patients, even federal healthcare system, global guaranteeing uniform levels over country overcome local institutions when necessary.