Atopic Dermatitis: Perspectives and Attitudes of Adult Patients and Affected Child Caregivers Assessed by Focus Group

摘要: Introduction: Important dimensions such as personal experiences, attitudes toward disease, its causes and treatments, are not fully addressed in clinical trials. Focus group (FG) has emerged an interesting valuable tool research complementing this gap. The aim of qualitative was to assess both caregivers patients dealing with atopic dermatitis (AD) their attitudes, experiences perspectives the disease topical treatment well impact quality life (QoL).Material Methods: For discussion sessions, 10 children adult were recruited. Two sessions FG took place 3 main themes discussed: AD, treatments QoL. All activities recorded video discussions notes then transcribed a document, followed by transcripts analysis.Results: best descriptive feelings moment diagnosis where “concern” (30%) “quality life” for patients, respectively. actual “positive” emotion or state mind “overcoming” (21%) “control” (17%). “negative neutral” “fear” (13%) “resignation” (18%), but when projecting child, “frustration” (19%) most mentioned. In relation mean global satisfaction high tacrolimus (8.5/10), except item “price”. case corticosteroids received better score (8.0/10), exception “tolerability/adverse effects”. Features like “preventive reduction flares” “free cortisone” important participants “ideal medicine” setting. showed levels negative QoL due 47% 64.6% considering scores “very much” “a lot” interference, respectively.Conclusion: Qualitative studies AD scarce our knowledge is first one gathering caregivers. yielded approach useful complement data retrieved from trials drive decisions researchers health authorities.