How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside
作者： Teresa Vente
DOI: 10.1007/S40124-021-00238-9
关键词:
摘要: Purpose of review This paper seeks to explore the definitions quality life and its application pediatric research clinical practice. also highlights some imperfections in evaluating patient-reported outcomes designed measure pediatrics. Additionally, this explores unique challenges promoting during COVID-19 pandemic. Recent findings There are numerous different measurement scales examine children ages, with a variety disease states. Summary Despite number tools, not every patient population has validated measure, including patients palliative care needs. is no consensus on how incorporate from into practice recommendations. Professional organizations offer guidance resources for families encourage focus
springer.com
sci-hub.st 参考文章(48)
Linda Eddy, Maria Cruz, The relationship between fatigue and quality of life in children with chronic health problems: a systematic review. Journal for Specialists in Pediatric Nursing. ,vol. 12, pp. 105- 114 ,(2007) , 10.1111/J.1744-6155.2007.00099.X
I-Chan Huang, Elizabeth A Shenkman, Vanessa L Madden, Susan Vadaparampil, Gwendolyn Quinn, Caprice A Knapp, Measuring quality of life in pediatric palliative care: challenges and potential solutions. Palliative Medicine. ,vol. 24, pp. 175- 182 ,(2010) , 10.1177/0269216309352418
James W Varni, Tasha M Burwinkle, Mariella M Lane, Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health and Quality of Life Outcomes. ,vol. 3, pp. 34- 34 ,(2005) , 10.1186/1477-7525-3-34
Angela L. Green, Jean McSweeney, Kathy Ainley, Janet Bryant, Comparing Parents’ and Children's Views of Children's Quality of Life After Heart Transplant Journal for Specialists in Pediatric Nursing. ,vol. 14, pp. 49- 58 ,(2009) , 10.1111/J.1744-6155.2008.00173.X
Leslie E. Spieth, Carole V. Harris, Assessment of Health-Related Quality of Life in Children and Adolescents: An Integrative Review Journal of Pediatric Psychology. ,vol. 21, pp. 175- 193 ,(1996) , 10.1093/JPEPSY/21.2.175
Maite Solans, Sabrina Pane, Maria-Dolors Estrada, Vicky Serra-Sutton, Silvina Berra, Michael Herdman, Jordi Alonso, Luis Rajmil, Health-Related Quality of Life Measurement in Children and Adolescents: A Systematic Review of Generic and Disease-Specific Instruments Value in Health. ,vol. 11, pp. 742- 764 ,(2008) , 10.1111/J.1524-4733.2007.00293.X
Jeanne M. Landgraf, Ineke Vogel, Rianne Oostenbrink, Margriet E. van Baar, Hein Raat, Parent-reported health outcomes in infants/toddlers: measurement properties and clinical validity of the ITQOL-SF47. Quality of Life Research. ,vol. 22, pp. 635- 646 ,(2013) , 10.1007/S11136-012-0177-8
Joanne Wolfe, Liliana Orellana, E. Francis Cook, Christina Ullrich, Tammy Kang, Jeffrey Russell Geyer, Chris Feudtner, Jane C. Weeks, Veronica Dussel, Improving the Care of Children With Advanced Cancer by Using an Electronic Patient-Reported Feedback Intervention: Results From the PediQUEST Randomized Controlled Trial Journal of Clinical Oncology. ,vol. 32, pp. 1119- 1126 ,(2014) , 10.1200/JCO.2013.51.5981
The Whoqol Group, None, The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Social Science & Medicine. ,vol. 46, pp. 1569- 1585 ,(1998) , 10.1016/S0277-9536(98)00009-4
Samantha J. Anthony, Enid Selkirk, Lillian Sung, Robert J. Klaassen, David Dix, Anne F. Klassen, Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients? Quality of Life Research. ,vol. 26, pp. 273- 281 ,(2017) , 10.1007/S11136-016-1393-4