Information gathering over time by breast cancer patients.

作者: Melisa J Satterlund , Kevin D McCaul , Ann K Sandgren

DOI: 10.2196/JMIR.5.3.E15

关键词:

摘要: BACKGROUND: Unlike many patients of the past, today's health-care users want to become more informed about their illnesses, and they most current information. The Internet has a popular way access information, since its introduction people are turning it find medical Studies report that anywhere from 36% 55% American population use is using research these percentages have been rising. Cancer 1 top 2 diseases which seek information on Internet. Some studies specifically asked whether breast cancer for information; estimates range 10% 43% who Internet, with higher usage being associated education, greater income, younger age. OBJECTIVE: To identify where illness track changes over time, active treatment survivorship status. METHODS: Participants were 224 women had recently diagnosed Stage I, II, or III cancer. Each woman was contacted approximately 8 months 16 after diagnosis 10 different sources could used obtain support cancer. RESULTS: Eight diagnosis, 3 by books (64%), (49%), videos (41%). However, at follow-up (16 diagnosis), frequently cited source (40%), followed (33%), Society (17%). We found continued as means gathering even ended. Significant unique predictors years formal education ages. stage not significant predictor use. CONCLUSIONS: Previous mixed percentage gather illnesses. results present study corroborate other data sets patients, just 44% reported diagnosis. Sixteen dropped slightly, but chief sharply time. continues play an important role survivors ended, health professionals can this knowledge provide advice. [J Med Res 2003;5(3):e15]

参考文章(14)
Geraldine M Leydon, Mary Boulton, Clare Moynihan, Alison Jones, Jean Mossman, Markella Boudioni, Klim McPherson, Cancer patients' information needs and information seeking behaviour: in depth interview study BMJ. ,vol. 320, pp. 909- 913 ,(2000) , 10.1136/BMJ.320.7239.909
Ann K. Sandgren, Kevin D. McCaul, Short-term effects of telephone therapy for breast cancer patients. Health Psychology. ,vol. 22, pp. 310- 315 ,(2003) , 10.1037/0278-6133.22.3.310
Moyra E. Mills, Robin Davidson, Cancer patients' sources of information: use and quality issues Psycho-oncology. ,vol. 11, pp. 371- 378 ,(2002) , 10.1002/PON.584
Thomas R. Eng, Andrew Maxfield, Kevin Patrick, Mary Jo Deering, Scott C. Ratzan, David H. Gustafson, Access to Health Information and Support: A Public Highway or a Private Road? JAMA. ,vol. 280, pp. 1371- 1375 ,(1998) , 10.1001/JAMA.280.15.1371
Laurence Baker, Todd H. Wagner, Sara Singer, M. Kate Bundorf, Use of the Internet and E-mail for Health Care Information JAMA. ,vol. 289, pp. 2400- 2406 ,(2003) , 10.1001/JAMA.289.18.2400
Jane C. A. Raupach, Janet E. Hiller, Information and support for women following the primary treatment of breast cancer. Health Expectations. ,vol. 5, pp. 289- 301 ,(2002) , 10.1046/J.1369-6513.2002.00191.X
Gunther Eysenbach, John Powell, Oliver Kuss, Eun-Ryoung Sa, Empirical Studies Assessing the Quality of Health Information for Consumers on the World Wide Web: A Systematic Review JAMA. ,vol. 287, pp. 2691- 2700 ,(2002) , 10.1001/JAMA.287.20.2691
Michael A. Diefenbach, Jenevie Dorsey, Robert G. Uzzo, Gerald E. Hanks, Richard E. Greenberg, Eric Horwitz, Fredrick Newton, Paul F. Engstrom, Decision-making strategies for patients with localized prostate cancer. Seminars in Urologic Oncology. ,vol. 20, pp. 55- 62 ,(2002) , 10.1053/SURO.2002.30399
Marilynn Larkin, Online support groups gaining credibility The Lancet. ,vol. 355, pp. 1834- ,(2000) , 10.1016/S0140-6736(05)73097-X
Jose L. Pereira, Sheryl Koski, John Hanson, Eduardo D. Bruera, John R. Mackey, Internet Usage Among Women with Breast Cancer: An Exploratory Study Clinical Breast Cancer. ,vol. 1, pp. 148- 153 ,(2000) , 10.3816/CBC.2000.N.013