The Congenital Diaphragmatic Hernia Study Group: a voluntary international registry

摘要: The Congenital Diaphragmatic Hernia Registry (CDHR) was established to collect data on all infants treated at participating institutions with congenital diaphragmatic hernia (CDH) assess therapy and improve outcome. Since 1995, the CDHR has accumulated over 4000 infants. collective efforts of CDH Study Group have provided valuable information regarding efficacy various therapeutic interventions tried establish predictors Because is an uncommon, heterogeneous structural anomaly a wide spectrum severity, individual may vary significantly in their experiences treatment approaches. International multicenter registries, like CDHR, are useful provide clinically relevant direction by accumulating far more large patient population than any single institution might.