The Genetic Family as Patient

Bartha Maria Knoppers, Genetic information and the family: are we our brother's keeper? Trends in Biotechnology. ,vol. 20, pp. 85- 86 ,(2002) , 10.1016/S0167-7799(01)01879-0

Sandi Dheensa, Gillian Crawford, Claire Salter, Michael Parker, Angela Fenwick, Anneke Lucassen, How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study. Familial Cancer. ,vol. 17, pp. 155- 166 ,(2018) , 10.1007/S10689-017-9994-9

Mark A Rothstein, Reconsidering the duty to warn genetically at-risk relatives. Genetics in Medicine. ,vol. 20, pp. 285- 290 ,(2018) , 10.1038/GIM.2017.257

Caroline F. Wright, James S. Ware, Anneke M. Lucassen, Alison Hall, Anna Middleton, Nazneen Rahman, Sian Ellard, Helen V. Firth, Genomic variant sharing: a position statement. Wellcome Open Research. ,vol. 4, pp. 22- ,(2019) , 10.12688/WELLCOMEOPENRES.15090.2

Edward S Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M Lucassen, Emily Postan, Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives? Journal of Medical Ethics. ,vol. 45, pp. 504- 507 ,(2019) , 10.1136/MEDETHICS-2018-105229

Thu Nguyen Minh, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kautmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tasse, Durhane Wong-Rieger, Bartha Maria Knoppers, Petra Kaufmann, Bartha Knoppers, Anne-Marie Tasse, Model consent clauses for rare disease research. BMC Medical Ethics. ,vol. 20, pp. 1- 7 ,(2019) , 10.1186/S12910-019-0390-X

Hae Lin Cho, Christine Grady, Anita Tarzian, Gail Povar, Jed Mangal, Marion Danis, Patient and Family Descriptions of Ethical Concerns. American Journal of Bioethics. ,vol. 20, pp. 52- 64 ,(2020) , 10.1080/15265161.2020.1754500