Voting with their Mice: Personal Genome Testing and the “Participatory Turn” in Disease Research

摘要: While the availability of genome tests on internet has given rise to heated debates about likely impact personal information test-takers, insurance, and healthcare systems, in this article I argue that a more tangible effect genomics is it started change how participation disease research conceived enacted. examine three models customers are encouraged engage in. conclude with an evaluation pitfalls benefits “crowdsourcing” genetic context genomics.