Making sense of a diagnosis of incurable cancer: The importance of communication

作者: Elizabeth Anne Lobb , Judith Lacey , Winston S Liauw , Lesley E White , Annmarie Hosie

DOI: 10.26443/IJWPC.V2I1.88

关键词:

摘要: Purpose:  Patients diagnosed with incurable cancer may experience existential distressand difficulty in re-appraising their lives because of uncertainty about the future. Objectives: This study sought to understand how patients living made sense diagnosis, they prepared for future and what support wanted from health professionals.  Subjects:  27 were recruited oncology palliative care service at three metropolitan hospitals. Methods:  A qualitative research approach was used. Semi-structured face-to-face interviews conducted. Interviews audio-taped transcribed verbatim.  Data analyzed using constant-comparative method.  Results:  Participants did not express a need make diagnosis nor always ascribe particular religious belief; rather, many relied on personal spirituality or philosophy bring meaning experience. Importance placed doctor keeping up technology, being honest, confident positive. Conclusion:  this had but making current situation conscious priority. For these patients, positive, as certainty them indicates death is approaching. What suggest, patient’s perspective, that there an implied contract between patient during period which involves managing flow difficult information so can maintain normality long possible. Understanding helps explain having advance planning conversations within setting, despite opportunities longer disease trajectory would seem offer.

参考文章(34)
John R. Peteet, Michael J. Balboni, Spirituality and religion in oncology CA: A Cancer Journal for Clinicians. ,vol. 63, pp. 280- 289 ,(2013) , 10.3322/CAAC.21187
Shane J. Lopez, C. R. Snyder, Handbook of positive psychology Oxford University Press. ,(2002)
Balfour M. Mount, Patricia H. Boston, S. Robin Cohen, Healing connections: on moving from suffering to a sense of well-being. Journal of Pain and Symptom Management. ,vol. 33, pp. 372- 388 ,(2007) , 10.1016/J.JPAINSYMMAN.2006.09.014
Jean L. Kristeller, Virgil Sheets, Tom Johnson, Betsy Frank, Understanding religious and spiritual influences on adjustment to cancer: individual patterns and differences Journal of Behavioral Medicine. ,vol. 34, pp. 550- 561 ,(2011) , 10.1007/S10865-011-9335-7
George A. Bonanno, Anthony Papa, Kathleen Lalande, Nanping Zhang, Jennie G. Noll, Grief processing and deliberate grief avoidance: a prospective comparison of bereaved spouses and parents in the United States and the People's Republic of China. Journal of Consulting and Clinical Psychology. ,vol. 73, pp. 86- 98 ,(2005) , 10.1037/0022-006X.73.1.86
Keith G. Wilson, Harvey Max Chochinov, Christine J. McPherson, Merika Graham Skirko, Pierre Allard, Srini Chary, Pierre R. Gagnon, Karen Macmillan, Marina De Luca, Fiona O'Shea, David Kuhl, Robin L. Fainsinger, Andrea M. Karam, Jennifer J. Clinch, Desire for euthanasia or physician-assisted suicide in palliative cancer care. Health Psychology. ,vol. 26, pp. 314- 323 ,(2007) , 10.1037/0278-6133.26.3.314
Sébastien Simard, Belinda Thewes, Gerry Humphris, Mélanie Dixon, Ceara Hayden, Shab Mireskandari, Gozde Ozakinci, Fear of cancer recurrence in adult cancer survivors: a systematic review of quantitative studies Journal of Cancer Survivorship. ,vol. 7, pp. 300- 322 ,(2013) , 10.1007/S11764-013-0272-Z
Karen E Steinhauser, Nicholas A Christakis, Elizabeth C Clipp, Maya McNeilly, Lauren McIntyre, James A Tulsky, Factors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care Providers JAMA. ,vol. 284, pp. 2476- 2482 ,(2000) , 10.1001/JAMA.284.19.2476
Marjorie Kagawa-Singer, Redefining health: living with cancer. Social Science & Medicine. ,vol. 37, pp. 295- 304 ,(1993) , 10.1016/0277-9536(93)90261-2
Lawren H. Daltroy, Martin G. Larson, Holley M. Eaton, Charlotte B. Phillips, Matthew H. Liang, Discrepancies between self-reported and observed physical function in the elderly: the influence of response shift and other factors Social Science & Medicine. ,vol. 48, pp. 1549- 1561 ,(1999) , 10.1016/S0277-9536(99)00048-9