Trust and Justice in Big Data Analytics: Bringing the Philosophical Literature on Trust to Bear on the Ethics of Consent

摘要: Much bioethical literature and policy guidances for big data analytics in biomedical research emphasize the importance of trust. It is essential that potential participants trust so they will allow their to be used further research. However, comparatively, little guidance offered as what trustworthy oversight mechanisms are, or how should support them, are collected, shared, used. Generally, “trust” not characterized well enough, meaningfully term systematically applied development. Yet points made philosophical on can help. They us, only better distinguish different ways may interpreted, but also determine approaches align with governance—in relate key concepts related laws, help balance individual group interests sharing. This article draws from identify a relationship among consent, trust, justice. Specifically, parallels drawn between “character-trustworthiness” “natural justice,” set widely held legal safeguards intended ensure decision-makers follow pattern procedural fairness which protects rights thereby maintains public confidence decision-making process. Relevance traditional principles, established consent procedures addressed throughout. In conclusion, actions suggested.