Helping young children understand inherited cancer predisposition syndromes using bibliotherapy.

摘要: Communication with children about hereditary conditions in the family can be difficult for parents. Yet, good communication strategies are leading determinants of adaptation and resilience. With inherited cancer predisposition syndromes that affect young such as Li-Fraumeni syndrome (LFS) pheochromocytoma paraganglioma (HPPS), genetic testing subsequent surveillance at-risk is optimal intervention. Given often commences early, providing their parents appropriate counseling important informed decision making. To inform strategies, we used a bibliotherapeutic framework, where stories delivered prescriptively (i.e., 'bibliotherapy'), to develop psycho-educational resource aged 5-10 years old at risk either LFS or HPPS. Illustrated storybooks were created based on models developmental comprehension. ascertain experience, invited read storybook child/ren participate semi-structured qualitative interviews. Transcripts analyzed thematically using general inductive approach. The reportedly supported these issues without raising emotional distress themselves children. key stages interaction facilitated by use this resource, all reported it would have been useful when first tested and/or diagnosed. This study lays foundation application bibliotherapy intervention demonstrates may improve process between regarding pediatric-inherited syndromes.