作者: Michael Stellefson , Julia Alber , Samantha Paige , Daniela Castro , Briana Singh
DOI: 10.2196/RESPROT.4591
关键词:
摘要: Background: Despite research supporting the use of care coordination in chronic obstructive pulmonary disease (COPD), there is relatively little known about comparative effectiveness different strategies used to organize for patients. To investigate most important COPD strategies, community-based stakeholder input needed, especially from medically underserved populations. Web-based platforms are electronic tools now being bring together individuals underrepresented populations share and obtain clarification on (CER) ideas, questions, hypotheses. Objective: Use low computer-literate, collaborative survey technology evaluate priorities CER coordination. Methods: A mixed-method, concurrent triangulation design was collect data a virtual advisory board stakeholders including patients with COPD, informal caregivers, clinicians, scientists. The eDelphi method conduct 3 iterative rounds surveys. In first 2 rounds, panelists viewed series “mini prospectus” YouTube video presentations rated their level agreement importance 10 topics using 7-point Likert scales. final third-round survey, ranked (1=most important, 8=least important) commented 8 remaining that favored throughout rounds. Following were asked provide feedback potential impact engagement network dedicated improving COPD. Results: Thirty-seven following as (lower means indicate greater importance): (1) measurement quality (mean 2.73, SD 1.95); (2) management other health issues 2.92, 1.67); (3) rehabilitation model 3.72; 1.93); (4) 4.12, 2.41); (5) comprehensive patient education 4.27, 2.38). Stakeholder comments relative these primarily addressed comparing symptom evaluating new methods patient-provider communication. Approximately one half panel assembled indicated could enable more online community meetings (n=19/37, 51%) facilitate opportunities suggest, comment on, vote ideas (n=18/37, 49%). Conclusions: Members this unique engaged structured communication process identified community-specific questions. Findings study support need evaluates measures assess delivery treatments interventions among [JMIR Res Protoc 2015;4(3):e103]