Caregiver Perceptions of Healthcare Providers and Environments Related to Children with Autism Spectrum Disorder

作者: Deanna Klettlinger , Lynn Wirfel , Brittany Bielak

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摘要: The healthcare setting can be intimidating for any child. For children with autism spectrum disorder (ASD), in particular, this cause anxiety and elicit disruptive behavior. reactions of ASD to settings have not been widely studied. This study explores the lived experience caregivers related providers environments. A qualitative phenomenological approach methods guide study. Purposive sampling was utilized at a resource center identify recruit participants fulfilling inclusion criteria. Sample size consisted four female two male adults. Semi-structured interviews were performed voice recorded. then analyzed revealed themes like sensory considerations, acknowledgement that every child is different, caregiver responsibilities, needed preparation organization, need more compassion, understanding, knowledge within setting. In conclusion, it found there strong education compassion when working ASD. CAREGIVER PERCEPTIONS 3 Caregiver Perceptions Healthcare Providers Environments Related Children Autism Spectrum Disorder (ASD) generalized term group developmental disabilities affect communication social interactions (CDC, 2012). includes symptoms differing levels severity (National Institute Mental Health, Primary include trouble interaction, communication, both verbal nonverbal, as well continual behaviors (Autism Speaks, 2014). has associated intellectual problems, health issues, motor coordination but also linked proficiency subjects such art, math, music, visualization Early brain development thought where begins, key typically present around ages three 2009, nearly 560,000 between birth twenty-one years age United States had diagnosed (Scarpinato et al., 2010). 2014, over million people Approximately one 42 boys 189 girls recent occurrence increasing ten seventeen percent year As prevalence increases, so does understanding managing particularly true who may seeing these on daily basis Going into challenge ASD, their caregivers, providers. order provide an 4 environment would conducive children’s needs, knowing caregivers’ perspectives problems suggestions improvement vital (Johnson & Rodriguez, 2013). These help determine how appropriate following research questions are answered: What experiences relation environments? From caregiver’s perspective, what changes environments providers’ care techniques support positive ASD? Review Literature While many studies about exist, objectives vary. Researchers identified examined (Brookman-Frazee, Drahota, Stadnick, Palinkas, 2012b; Brookman-Frazee, Taylor, Garland, 2010; Drake, Johnson, Stoneck, Martinez, Massey, 2012; Hallett 2013), interventions (BrookmanFrazee Drake Rosenblatt 2011; Virues-Ortega perceptions react from standpoint therapists Baker-Ericzen, 2012a; Brookman-Frazee Green, 2007; Kopecky, Broder-Fingert, Iannuzzi, Connors, 2013; Minnes Steiner, 2008). exhibit signs behavior (Brookman-Frazee At 84.6% predominance, some most common challenges faced during 2012 b; Different 5 psychotherapy 2010), coping kits (Drake 2012), yoga (Rosenblatt 2011), intensive behavioral (Virues-Ortega Because focus perceptions, paragraph will describe settings, behaviors, care. Although few researchers studied 2012b), reactions, Kopecky Caregivers negative taking Outcomes dependent abilities practitioners significantly visits example, quantitative study, al. (2013) collected data 21-question survey filled out by 80 focused needs addressed settings. 29% reported specific words or actions triggers (Kopecky addition, 59% suggested distance space best strategies trying anxious children, while 23% indicated engage helpful Being aware essential providing better could possibly lead improved 6 treatment results overall greater Many used sample smaller than 25 et. 2008; limiting generalizability findings. Future using larger samples verify earlier studies. Additionally, only higher functioning end should lower functioning. There limited views More find obstacles ways manage issues healthcare, which gap Theoretical Framework Phenomenology guided perspective involves describing aim finding meaning making sense (Schmidt Brown, Meaning examining viewpoints persons through current focuses Caregivers’ observations trends, comfortable experiences. studies, obtained semi-structured chosen purposive 7 Through interviews, analyzed, resulting theme descriptions.

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