A review of the barriers to sharing in biobanking.

作者: Flora Colledge , Bernice Elger , Heidi C. Howard

DOI: 10.1089/BIO.2013.0039

关键词:

摘要: Although biobanks are gaining importance as tools in the field of biomedical research, enabling investigators to access large numbers catalogued samples and/or data, most have not reached their full potential. Numerous obstacles may prohibit efficient sharing of, and sample data collections. In order minimize or overcome these while meeting ethical criteria, first step is identify challenges between researchers, thus targeted solutions be implemented. To date, no one has specifically scope barriers currently identified literature, yet such a list essential if matters addressed. We reviewed literature on issues mentioned with without data. Our search 15 barriers, including logistical, ethical, legal issues. this article, we provide description discuss key themes, conclude that empirical research required determine extent addressed literature.

参考文章(54)
Nikola Biller-Andorno, Alexander M. Capron, Andrea Boggio, Alexandre Mauron, Bernice Elger, Comparing Guidelines on Biobanks: Emerging Consensus and Unresolved Controversies ,(2005)
Christopher Thomas Scott, Timothy Caulfield, Emily Borgelt, Judy Illes, Personal medicine—the new banking crisis Nature Biotechnology. ,vol. 30, pp. 141- 147 ,(2012) , 10.1038/NBT.2116
J. Wolter Oosterhuis, Jan Willem Coebergh, Evert-Ben van Veen, Tumour banks: well-guarded treasures in the interest of patients Nature Reviews Cancer. ,vol. 3, pp. 73- 77 ,(2003) , 10.1038/NRC973
Anne Cambon-Thomsen, The social and ethical issues of post-genomic human biobanks. Nature Reviews Genetics. ,vol. 5, pp. 866- 873 ,(2004) , 10.1038/NRG1473
Darren Shickle, Marcus Griffin, Karen El-Arifi, Inter- and intra-biobank networks: classification of biobanks. Pathobiology. ,vol. 77, pp. 181- 190 ,(2010) , 10.1159/000292651
Fay Betsou, David L. Rimm, Peter H. Watson, Christopher Womack, Allison Hubel, Robert A. Coleman, Liz Horn, Sharon F. Terry, Nikolajs Zeps, Brian J. Clark, Lisa B. Miranda, Robert E. Hewitt, Gloria D. Elliott, What are the biggest challenges and opportunities for biorepositories in the next three to five years Biopreservation and Biobanking. ,vol. 8, pp. 81- 88 ,(2010) , 10.1089/BIO.2010.8210
Danijela Budimir, Ozren Polašek, Ana Marušić, Ivana Kolčić, Tatijana Zemunik, Vesna Boraska, Ana Jerončić, Mladen Boban, Harry Campbell, Igor Rudan, Ethical aspects of human biobanks: a systematic review. Croatian Medical Journal. ,vol. 52, pp. 262- 279 ,(2011) , 10.3325/CMJ.2011.52.262
J. S. Forsberg, M. G. Hansson, S. Eriksson, The Risks and Benefits of Re-Consent Science. ,vol. 332, pp. 306- 306 ,(2011) , 10.1126/SCIENCE.332.6027.306-A
Hans-E Hagen, Jan Carlstedt-Duke, Building global networks for human diseases: genes and populations. Nature Medicine. ,vol. 10, pp. 665- 667 ,(2004) , 10.1038/NM0704-665