Integrating care for individuals with FASD: results from a multi-stakeholder symposium

摘要: Fetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems such as health, education, justice social services. FASD is complex neurodevelopmental disorder that results in permanent disabilities associated service needs change across affected individuals’ lifespans. There degree of interdependency among medical non-medical providers these do not frequently meet or plan coordinated continuum care. Improving overall care integration will increase provider-specific system capacity, satisfaction, quality life outcomes. We conducted consensus generating symposium comprised 60 experts from different stakeholder groups: Allied & Mental Health, Education, First Nations Metis Advocates, Primary Care, Government Health Policy, Regional Coordinators, Social Services, Youth Justice. Research questions addressed barriers solutions to group-specific system-wide research priorities. Solutions prioritized lists were generated by combining the Electronic Meeting System approach with modified ‘Nominal Group Technique’. capacity (e.g., training, awareness) be increased both providers. Outcomes improved implementing: multidisciplinary primary group practice models, navigators/advocates, patient centred homes. records are accessible multiple key tool enhancing quality. Eligibility criteria for services main barrier systems. need culturally community-specific approaches communities. better integrate individuals families living FASD. Care well positioned play central important role facilitating supporting integration. needed address best practices interventions, supports programs) long-term individual family outcomes following diagnosis